MDA St. Louis

Dan Polizzi, member of Aurora Firefighters Local 99, is making his move for Movement Month! In addition to being an #IAFF fire fighter, Dan has also appeared on American Ninja Warrior. He is excited to show how you can #MakeYourMove like a fire fighter and Ninja Warrior.

TONIGHT 5/20, join us for our annual MDA's Wings Over Wall Street (VIRTUAL) event to Unlock the Cure for ALS. With ABC Eyewitness News Anchor Bill Ritter, honoring the late Pat Quinn co-founder of the Ice Bucket Challenge, experts from the ALS medical community and families, and an auction. See below for a statement from Pat Quinn's father. For more info: https://one.bidpal.net/wow21/welcome

Thank you Savanna Woods Music for being an awesome part of our MDA family. Your message to MDA moms and to your mom, Lacey, is beautiful and we hope everyone has a very happy Mother's Day!

In recognition of ALS Awareness Month, join MDA’s Advocacy Institute featuring Representative Mike Quigley and Congressman Jeff Fortenberry, on May 24th at 4pm ET. This session will dive into the ACT for ALS, a piece of legislation that would speed up development and access to potentially lifesaving ALS therapies. Save your spot today! https://webinar.ringcentral.com//register/WN_aj7VdBiOTAeUt

Join us for our special Facebook Live event with Dr. Matthew B. Harms and Dr. Sabrina Paganoni, PhD where they will share ALS care and research updates.

MDA Virtual Camp

As we wrap up another amazing Shamrocks season, we want to give a BIG thank you to Acee's Neighborhood Market for their support of the 2021 Shamrocks Campaign. Together, Acee’s Food and Fuel and their customers were able to raise $4,755 to help Muscular Dystrophy Association !

Kudos and gratitude to the local Sonic Drive In locations (owned by 24 Franchise Group) for your incredible efforts to raise funds for MDA through the 2021 #Shamrocks program! Together with their generous customers they raised more than $20,000! Thank you!

New year, new resolutions! Get motivated in 2021 and register for the Bank of America Chicago Marathon or Trans NH Bike Ride with MDA Team Momentum this week to receive a free pair of MDA 70th Anniversary goodr sunglasses. www.mdateam.org

Thank you GPM Investments, LLC. for hosting a Season of Giving campaign for MDA! Visit one of 1300 locations across 23 states this month to receive discounts and support MDA. Scotchman Fas Mart/Shore Stop Convenience Stores Roadrunner Markets Village Pantry R-Store E-Z MART Stores Young's Food Stores Next Door Stores

ICYMI: MDA released a FAQ about the COVID-19 vaccine answering your questions on how it impacts the neuromuscular community and our continued advocacy efforts to secure priority access for people living with neuromuscular diseases. https://www.mda.org/covid19#vaccine

Have questions about the COVID-19 vaccine? Check out our FAQ on how it impacts the NMD community as we continue to advocate for priority access for those living with muscular dystrophy, ALS and related neuromuscular diseases. https://www.mda.org/covid19#vaccine

Individuals living with neuromuscular disease are at high risk for COVID-19 outcomes. MDA Advocacy continues to advocate on behalf of MDA families for early access to the COVID-19 vaccine. More from CNN.

A BIG thank you to Kevin Hart and ALL who showed up for and tuned into the FIRST #MDAKevinHartTelethon! We’ve raised $10,548,454 - and we're not done yet. Visit thetelethon.org for more ways to give and advocate so that ALL have equal access to care and opportunity.

Today’s the day! Tune in at 8PM EST for an unforgettable evening! RSVP below and let us know what you’re most excited for in the comments! #mdakevinharttelethon

We’re ready, how about you? #mdakevinharttelethon

Join us here at 10pm ET, immediately following the #MDAKevinHartTelethon for the MDA 70th Anniversary Show, hosted by Nancy O'Dell and Jann Carl. We will have great stories from members of our MDA community, groundbreaking research in the field, advocacy, and a host of celebrities. Including Charo, David Hasselhoff, Shawn Parr, Larry Gatlin of Larry, Steve & Rudy - The Gatlin Brothers, and more! Donate at MDAgive.org.